Category Archives: Medical Links

More Than a Walk in the Rain

No matter how great your support system, and I am very lucky in that department, there are always challenges that one must face alone.

One of my challenges is the annual walk to raise money for my mother’s namesake fund at Princess Margaret Hospital.  My parents started the fund in 2004 shortly after my mother’s leukemia diagnosis.  They were amazed at how expensive it is to be chronically ill.  For some, the cost of a simple cab ride to the hospital can be a barrier to treatment.  In other cases, families have to choose between eating and paying rent or getting medication which can be astronomically expensive and not covered by OHIP or even extended health care.  Yes, even in Canada.

My parents were distressed both by the financial burdens on patients and the reality that the doctors and nurses were regularly forced to either watch people go without help or pay for it out of their own pockets.  By being a resource for the patients the fund also lifts some of the burden on the doctors and nurses.  My mother was told many times what a huge difference her fund made to her fellow patients and to the hospital staff who care for them.  We will always be grateful for that.

Every year we replenish the fund by asking people to sponsor us for our 5k walk as part of the Toronto Marathon.  I find this process a challenge indeed.  Not the fundraising part per se.  I used to work as a fundraiser and am comfortable asking for money on behalf of such a worthy project.  People respond well.  Our team has been a top fundraiser several times over the last several years.

The tough part for me is race day.  Although the reality of my mother’s illness and death is with me daily, arriving at Queen’s Park and seeing the various groups of people coming together for their respective teams in memory or support of their own friend or family member brings it all back.  And every year there are large new teams, fancily T-shirted with snappy names, representing every kind of cancer you can imagine.  They are there for the first time.  For me it’s a sad reminder that this cruel disease has not and will not let up.

I must confess that race day this year was somewhat easier for me.  It was May 15th and the weather was typical of this spring – cold and very rainy.  Our son was with me so I was somewhat distracted, first by his increasingly wet feet and then by his musings, about 2k into the walk, about taking the subway back if he was too tired when we got to the half way mark. Seconds after he mentioned the subway we crossed University Avenue and began the trek back to the finish line. Although our 5k became a solid 4k, we did finish.  And this time, instead of being choked with emotion as I crossed the finish line I was grateful that our little man would soon be out of his wet clothes.

I am thankful to have had his cheerful and undaunted company during the walk.   I am also grateful to those who helped with the fundraising.  They all did an amazing job.  But those who actually came out to walk on such a horrible day went truly above and beyond.  My father was away so my brother, my son and I represented our family.  We needed to be there.  Our father’s friend Frank who is in his late 70’s walked the entire route despite sore knees and hips.  Family friends, Sam and Arnie along with Leslie, Charotte, Stephen, Rosanna and Bruce who work with my father, Wow! It is one thing to help fundraise but another to give up your Sunday morning to walk in the cold rain.  Thank you all so much.  And to our faithful and generous donors – we literally could not do it without you.  But ultimately it’s not about us, it is about helping people who are fighting for their lives in the only way we can.

Safe Disposal of Left Over/Expired Pharmaceuticals

The only safe thing to do with left over and/or expired pharmaceutical drugs is to return them to the pharmacy from which you purchased them.  If they go down the drain or into the toilet bowl the drugs end up in our water supply.  Just imagine the cocktail if everyone disposed of only one left over prescription this way each year…

I called our local pharmacy recently to ask for a change in the wording currently found on their prescription labels i.e. “discard remainder”.  The pharmacist was quick to explain that people are counseled to return leftovers to the pharmacy and given pamphlets about the recycling program.  I told him that we have been using that pharmacy – albeit on a sporadic basis – for 10 years and have never been told about their recycling program.

I also suggested that the verbal communication may only go as far as the person receiving it and that by putting the instruction on the label, they may reach more people in the household.

The pharmacist agreed that the wording should be “return remainder to the pharmacy”  but said that making this change would be up to each individual pharmacist.  I found his response disturbing in that since there is really only one safe way to get rid of these remnants, there is really no room for ego in whether or not the instruction is made.

Perhaps if more people start asking for this change we will get better results.

If your pharmacy does not put clear instructions for returning remnants to them on their usage labels, please consider asking that they do so.

If It Looks Like A Duck…

Today I spoke with yet another person who has H1N1 but thinks its "just the regular flu". These folks haven't been to the doctor so haven't been told that there is no other flu around right now.  The denial interests me because I think it reflects the terror instilled in us by the media.  It's as if they can't imagine they have it because when you get it you are supposed to die.

Blood Test for Food Allergies

In my January 7 entry I mentioned my son's allergy testing but didn't provide details about how it was done.  The test was done at Rocky Mountain Analytical, a lab located in Calgary, Alberta. Their test kit comes complete with everything needed to draw the blood sample, prepare it for testing and even mail it to the lab for analysis.   
http://www.rmalab.com

The testing told us that my son has numerous IgG (delayed reaction) allergies.  When most people think of food allergies they think of a child carrying an epi pen because if she ingests a spec of a peanut her throat could close up and she could die.  The latter would be an IgE allergy.  My son does not have that kind of allergy and for that I am grateful.  My heart goes out to families who must deal with that reality.  That said, my son's slow acting allergies clearly affected his health and and could have done further damage in the long term if not recognized and respected.     

In November, 2007, based on my son's test results we removed gluten, dairy and eggs from his diet as well as citrus, peanuts and garlic to which he was shown to react but to a lesser degree.  He did indeed get his next 'scheduled' cold/fever but the one after that, in March, 2008, was mild. 

Last summer we started reintroducing citrus, peanuts and garlic and he has been eating them in moderation since then. 

Since the end of March, 2008, he has had only one low grade fever ie 101F
and that lasted only a few hours.  He has had a few runny noses and one
cough.

He has not missed a single day of school due to illness since this school year began in September 2008.

Although this kind of testing is considered 'alternative' by some, in my experience it provided valid and valuable information.  If you are looking for a way to test for an allergy to gluten, this might be worth considering.  We did the testing through our Naturopath but there are numerous
medical professionals who can order it.  The testing is not covered by
OHIP but may be covered under private medical coverage.